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admin [at] anchondroplasia [dot] co [dot] uk
| Category | Section | |
|---|---|---|
| Charities & Support Groups | » | Achondroplasia |
| Charities & Support Groups | » | Restricted Growth |
| Children | » | Growth |
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Many people wonder, "What is Achondroplasia?"
Achondroplasia is one of the most common forms of short limb dwarfism.
Achondroplasia is a bone growth disorder that affects 1 in every 15,000 to 40,000 births.
Achondroplasia is called an autosomal dominant condition.
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Registered Office
info [at] childgrowthfoundation [dot] org
020 8995 0257
Membership Enquiries
jenny [dot] child [at] childgrowthfoundation [dot] org
020 8912 0723
| Category | Section | |
|---|---|---|
| Charities & Support Groups | » | Children |
| Children | » | Growth |
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The Foundation is the UK's leading charity relating to children's growth.
This site contains information of benefit to parents with a child who has a diagnosed or suspected growth problem, to people who have a growth problem and their families, and to people and medical professionals with an interest.
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evc [at] crydee [dot] plus [dot] com
| Category | Section | |
|---|---|---|
| Charities & Support Groups | » | Ellis-van Creveld Syndrome |
| Charities & Support Groups | » | Restricted Growth |
| Children | » | Growth |
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To inform parents about Ellis-van Creveld syndrome.
To facilitate parent-parent networking. Although information is important, sometimes the greatest comfort is obtained from knowing you are not alone.
To collect and share as much current medical information as I can about EvC and its treatment.
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office [at] restrictedgrowth [dot] co [dot] uk
0300 111 1970
| Category | Section | |
|---|---|---|
| Charities & Support Groups | » | Restricted Growth |
| Children | » | Growth |
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The RGA is a UK based charity that provides vital information and support to improve the quality of life for persons of restricted growth (dwarfism), and their families.
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0151 526 0134
| Category | Section | |
|---|---|---|
| Charities & Support Groups | » | Restricted Growth |
| Children | » | Growth |
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We are a voluntary non-profit making registered charity (Reg No 1123246), set up to enrich the lives of individuals and families affected by the following Primordial Dwarfism subtypes:
PD Non Specified
MOPDI
MOPDII
MOPDIII
MOPD Unknown
Meier Gorlin Syndrome
Seckell Syndrome
We will endeavour to provide support and encouragement to these individuals and their families in any way which is charitable in accordance with the law in England and Wales.