| Category | Section | |
|---|---|---|
| Charities & Support Groups | » | Children |
| Charities & Support Groups | » | Epilepsy |
| Children | » | Epilepsy |
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Abbie went to sleep on the 1st December 2006, we later found out she had passed in her sleep with Sudden Unexpected Death in Epilepsy (SUDEP).
We were left devasted as she was our only child in our life.
In Abbies memory we have set up a charity named Abbies Love, and through numerous fundraising activities we have so far managed to raise over £66'000. All proceedings go towards Epilepsy Research and support. A recent donation of £30'000 has been given to James Cooks hospital in Middlesbrough, bringing the total donated to the hospital to £60'000.
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| Category | Section | |
|---|---|---|
| Charities & Support Groups | » | Epilepsy |
| Children | » | Epilepsy |
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Epilepsy Action is the UK's largest epilepsy membership organisation, aiming to support the 450,000 people across the country with the condition, as well as educating the wider public and helping to break down the stigma that still exists about epilepsy.
In the Guildford area, our local branch acts as a support group to people with epilepsy, their families and friends, as well as leading the charge in informing and educating the public about the condition.
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| Category | Section | |
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| Charities & Support Groups | » | Epilepsy |
| Children | » | Epilepsy |
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Epilepsy Research UK is the only national charity solely dedicated to epilepsy research. We aim to substantially increase the funding available for research into the causes, treatment and prevention of this debilitating condition, which affects adults and children.
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| Category | Section | |
|---|---|---|
| Charities & Support Groups | » | Children |
| Charities & Support Groups | » | Epilepsy |
| Children | » | Epilepsy |
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We are the leading national epilepsy medical charity working for everyone affected by epilepsy, through our cutting edge research, awareness campaigns and expert care.
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| Category | Section | |
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| Charities & Support Groups | » | Children |
| Charities & Support Groups | » | Epilepsy |
| Children | » | Epilepsy |
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Epilepsy is a condition that causes somebody to have repeated fits. The medical term for an epileptic fit is seizure.
Epilepsy is a relatively common condition, affecting around 456,000 people in the UK. Epilepsy usually begins during childhood, although it can start at any age. Around one in every 280 children is affected by epilepsy.
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Parley is a charity which provides information and support to parents and relatives who have a child who has a long/short term medical condition, who has to undergo surgery or children with impairments or disabilities.
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Roald Dahl's Marvellous Children's Charity provides assistance for children in the UK living with specific haematological (blood) and neurological (brain) conditions.
We are currently targeting our support on the following conditions:
Neurology:
* Acquired brain injury
* Neuro-degenerative conditions
* Complex / rare and serious forms of Epilepsy
Haematology:
* Long-term debilitating blood diseases of childhood, excluding cancer.
Our priorities are:
* to provide help for individual children and families experiencing hardship as a result of living with one of our priority medical conditions.
* to fund charitable organisations which are providing services specifically for children living with one of our priority medical conditions.
* to fund children's nurses specialising in our priority medical conditions.
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Flexible alternatives to room padding for those with autism,
epilepsy, challenging behaviour and other special needs
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St Elizabeth’s Centre was established in 1903 in a 68 acre parkland setting at Much Hadham by The Congregation of the Daughters of the Cross of Liege. The Centre specialises in the fields of epilepsy, associated neurological disorders and other complex medical conditions. The Centre also provides for children within the autistic spectrum. St Elizabeth's is one of only two national epilepsy centres offering a range of services to all age groups with learning disabilities.
The Centre provides holistic care, support, health and education services in a safe environment for very vulnerable people recognising them to be unique individuals who should be valued, supported and enabled to maximise their personal potential in all areas of life. All referrals are welcomed regardless of faith, culture or ethnicity.
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| Category | Section | |
|---|---|---|
| Charities & Support Groups | » | Epilepsy |
| Children | » | Epilepsy |
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Epilepsy Action is the largest member-led epilepsy organisation in Britain, acting as the voice for the UK's estimated 456,000 people with epilepsy, as well as their friends, families, carers, health professionals and the many other people on whose lives the condition has an impact.
As well as campaigning to improve epilepsy services and raise awareness of the condition, we offer assistance to people in a number of ways including a national network of branches, accredited volunteers, regular regional conferences and freephone and email helpline.
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The National Centre for Young People with Epilepsy (NCYPE) is a national charity for children and young people aged 5 to 25 with epilepsy and other neurological conditions. For general enquiries about our residential special school, college and the assessment and rehabilitation service.
Young Epilepsy's campus in Lingfield, Surrey includes St Piers School.
St Piers is a non-maintained special school providing residential and day places. Together with our St Piers College, it lets around 200 children and young people aged 5 - 19 enjoy an education, and life and social experiences.
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